Love Data Week Panel Discussion: The Challenge of Balancing Biomedical Data Sharing and Patient Privacy Protection at Johns Hopkins

Description

As funders and journals continue to expand their policies encouraging the sharing of research data and code, researchers in the biomedical field are increasingly needing to find ways to share their human participant research without violating any legal or ethical constraints. Accomplishing this balance of sharing and protecting sensitive data can be challenging and often researchers are not sure how to do it and who to turn to for help. This panel, titled "The Challenge of Balancing Biomedical Data Sharing and Patient Privacy Protection at Johns Hopkins," brings together Johns Hopkins administrators and researchers to discuss policies and procedures around the sharing of sensitive data and what resources are available to researchers at Johns Hopkins to help meet this need.

• Moderator: Anne K. Seymour, Associate Dean, Welch Medical Library, Johns Hopkins Medicine, School of Nursing, Bloomberg School of Public Health
• Tom Burns, Associate Dean for Research Affairs, Johns Hopkins University School of Medicine
• Paul Nagy, Director of Education, Biomedical Informatics and Data Science, Johns Hopkins University Schools of Medicine, Public Health, and Engineering
• Stuart C. Ray, Professor of Medicine and Oncology, Vice Chair of Medicine for Data Integrity and Analytics, Johns Hopkins University School of Medicine, Department of Medicine, Division of Infectious Diseases
• Megan Kasimatis Singleton, Associate Dean for Human Research Protections and Director of the Human Research Protections Program, Johns Hopkins University School of Medicine

See the entire schedule of Johns Hopkins Data Services' Love Data Week.